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We are now enrolling individuals, and from those individuals we are compiling this information in a registry database under strict standards of security and privacy. Patients (or their parents) may request that they be notified of clinical trials for which they might be a candidate.

This website will be updated regularly. If you wish to receive notification of updates by email, or you wish to be contacted about our studies, please feel to fill out the web-based form below.
You can also print it out, fill in the same information, and send it to:


Clinical Research Coordinator
University of Utah
EIHG 4440
15 N. 2030 E.
Salt Lake City, UT 84112
801-585-1299
abringard@genetics.utah.edu



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